The Good News and The Bad News

anomolies
Today I’m starting a new series…MEDICAL ANOMALIES. To anyone whose ever fallen through the cracks of the modern marvel we reluctantly refer to as a medical system, I feel ya!

obama
With debate over the future of healthcare spinning into overdrive, I can’t help but reflect on my own situation. It has without a doubt been among the most frustrating debacles I’ve had to deal with. Everyone agrees that there is a problem.  And on the surface, it seems like nobody agrees on the solution.  But honestly, I don’t know if that’s actually true.  I think that when you talk to most people, there IS some consensus.  It’s just when you turn on the TV…well that’s another story entirely.  Honestly, I try not to turn on the TV much at all these days.  I try as much as possible to form my own opinions based on my own experiences. This is a pic I took of President Obama yesterday at the Minneapolis Health Care Rally.  I was pretty proud of it.  Politics aside, I think it’s a really good picture.

Probably the most important lesson I am taking away from this experience with my health is that it’s not up to anyone else to fix what’s wrong with me.  Other people can offer guidance and support.  But that’s about all I can hope for.  In the end, it’s a personal journey. For those who are just catching up, here is a little insight into mine…

It all started about three years ago. I started developing a number of ‘seemingly unrelated’ symptoms after incurring a prolonged toxic exposure. It was the age old story of someone cutting corners to save a few bucks and creating a situation where someone else (that person being me) had to pay a dear price for it. But it’s complicated. So, I won’t get into that. The short story is that I breathed in a bunch of toxic gas. The gas contained chemicals which ate through the lining of my lungs and caused severe respiratory problems. I also developed GASTROINTESTINAL PROBLEMS.

growing wheatgrass
The respiratory issues started to break up after a few months (though they still recur even now). The GI issues were much more elusive. But, I was able to get them under control after about fifteen months through a combination of an elimination diet and GROWING WHEATGRASS in my window. This is when I discovered raw food. It became my baseline diet.

hospital
Shortly after the GI issue began to stabilize, I was hospitalized. Essentially, I started vomiting blood one day and was having a lot of difficulty breathing. Among other things. I was in the HOSPITAL for about five days. During that time, doctors performed every test known to man while I watched documentaries about MEERKATS. In the end, nobody was able to come up with a satisfactory explanation of what happened. I had had a very severe bout of hepatitis, but it wasn’t clear what caused it. There were some different theories thrown around. The long and short of it was that there were a lot of test results that were abnormal (several of which I didn’t find out about until five months later), and none of the theories offered an explanation that encompassed them all. Whatever it was, it’s clear that it wasn’t caused by any of the ‘normal’ reasons that people get hepatitis.

weird eye
Since that time, I’ve had a range of unexplained symptoms and test results. Things like my eye swelling up for no reason, fatigue, chest pains, twitching, etc. Things that I’ve gone into more detail about in EARLIER POSTS.

wbcs
About five months ago, I was sent to yet another specialist to see if he might be able to cast some light on the situation. The waiting list was very long, but that appointment finally came due this week. Needless to say, I was a little nervous about what the doctor was going to say. He put me at ease, right away.

‘I know what you’re worried about. And you don’t have lupus…’ I breathed a sign of relief. ‘…At least not YET.’ Not exactly what I wanted to hear, but I appreciated his honesty. There was one really good sign. There is a screening test for lupus, the ANA, which I’ve tested positive for twice. Well, this time, I was NEGATIVE!

lupus recovery dietSeveral months ago, I read a book called the LUPUS RECOVERY DIET by Jill Harrington. She was diagnosed with lupus and recovered fully by switching to a raw vegan diet. She mentioned in the book that she was able to not only reverse her symptoms but also her ANA test. Interestingly, shortly after I got my first positive ANA, I encountered another person who was in remission from lupus. She told me the exact same story. I’m not sure if that’s what happened here, but it’s a very interesting coincidence at the very least.

mad scientistThere was some bad news. There are some abnormal tests that he said ‘they weren’t smart enough to figure out’. Some strange antibody problems. According to my blood tests, I should have arthritis and mono. I’ve been testing positive for mono for a long time. With most people you can see a spike in certain antibodies followed by a recovery. But mine are just stuck on. This doesn’t necessarily mean I have mono. And in fact, it means that I probably never had mono. Sometimes people with immune system issues make errors in their immune response and this causes them to react positively to lots of things they don’t have. At least, this is how it was explained to me. I was also missing some antibodies that everyone has. This may or may not become an issue. He wasn’t sure what to make of the arthritis test. Apparently, I had high levels of rheumatoid factor. Usually, this means arthritis. But it can also mean lupus, hepatitis, liver damage, or mono. Things which are all kind of suspect.

So, all in all, I think it was a good visit. The way I’m interpreting it is that things are getting better. I’m doing all the right things. They said that my immune system suffered a very big insult and it might just take a while for it to recover.  He also said he thought it was time to start thinking about changes that I could make with my work environment.  This I’ve heard before and have been stewing on for a while.

It’s starting to feel like the beginning of a new era.  For the last three years,  I’ve been very open to everyone’s advice. I’ve tried a little of everything without making any judgements. Just observations. But now, I have a pretty firm idea of what’s working for me. And what’s not. Now it’s time to cut out the flack and really get focused on what IS working.  I suspect there will be some big changes coming soon.  I’ll keep you posted…

ADDENDUM: About five minutes after I posted this, I found an ARTICLE ABOUT AUTOIMMUNE DISEASE that pretty much sums it up. It’s the first article like this I’ve seen in a mainstream media outlet.

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