Well, the view is a little cloudy these days, but the light is still getting through. Though admittedly, there were a couple days last week when I wasn’t so sure. If you have been reading my blog for a while, you will know that I am slowly recovering from a couple different accidents (a TOXIC EXPOSURE and a CAR CRASH). These have been inspiring a number of complications which I am discerning how to navigate. I haven’t figured out all the answers yet, but I can tell you that the outcome is destined to be something unusual. A lot of issues related to this struggle are climaxing right now. In a big way. It’s complicated. As such, I’m going to break them down over a few posts. As I try to digest them.
One of my big dramas this week has been with my eye. I was sitting in my apartment, typing on my computer last week. Seemingly out of nowhere, I started to get this really dry feeling in my eye at the same time that it felt like there was a foreign object in it. At first, I thought I got an eyelash in my eye. But when I looked in the mirror, I found this…
A big, ugly, growth on my eyeball. Attractive, right? Now before you get too freaked out, I should tell you that it’s not contagious. And on top of that, this EXACT SAME THING HAPPENED TWO YEARS AGO. It’s some IMMUNE SYSTEM MALFUNCTION, episcleritis. The last time this happened, I was freaked out. They referred me to an immunologist who I waited five months (on pins and needles) to see.
I went through all manner of testing (which I should add I am still paying off). And where did that get me? Pretty much nowhere. The doctor at the time told me that I didn’t have lupus…YET. Well, last week after this happened, my doctor told me I should go back to rheumatology and get checked (essentially exactly where I went two years ago…for the second time). This would have been my third trip to rheumatology. At this point, I had a meltdown. Seriously. What is the point? Every time I go, it’s this horribly expensive ordeal that’s really stressful, they never figure out anything, and at least half of the time someone (who shouldn’t even be licensed to practice medicine) tells me I’m a hypochondriac. NO WAY, JOSE. I’m not doing that AGAIN.
At first, I demanded to get sent to the Mayo. I was really upset. The good news is that this spurred a heart to heart with my doctor that was long overdue. The bad news is that they don’t know what is wrong. It is likely some variation of autoimmune disease. This is completely NOT SHOCKING to me. Unfortunately, autoimmune diseases are hard to diagnose anyway. Especially weird ones. It could be that it’s lupus. Or it could be something else. Whatever it is, it’s not lighting up the classic profile of test results. So they basically just keep an eye on me. And watch out for more complications until they can figure it out. This conundrum has caused a number of complications in my life that also climaxed this week. Epic sagas which deserve their own post. But in essence, I’m not even sure if I want them to figure it out honestly. Because if they do, all they can do is put me on steroids for the rest of my life. If you have been reading my blog for a while, you will also know that my LIVER IS NOT RIGHT. So while I would appreciate the validation, I don’t think that is ultimately a viable path for me. Not if I want to live anyway. Have I mentioned that this has been going on for five years? This is difficult enough for me to digest, and I’m a fairly open-minded, free spirit. My poor mother is about to tear her hair out. Yesterday, she hung up the phone on me because I decided to wait on the Mayo. Interestingly, this was my mild drama from last week. There’s a lot more of that coming down the pipe. Let me tell you…
In other more inspiring news, my garden is looking great! Here is my KALE FOREST. On the end, we have a couple rows of dino kale. The rest is green curly kale. The two plants that are flowering are actually the two that survived the winter. Amazing! I have been munching off of this bed a lot this week. We had a few nice rainstorms that really perked up all my lettuces.
Speaking of, check out my other lettuces. Looking good!! The swiss chard and the romaine are looking mighty fine! I filmed a video for PRL TV of me setting up my garden beds this year. I hope to have that ready soon.
I have some arugula and WILD SPINACH that is going to peak soon too. I love summertime! My grocery bill is going down, down, down.
I also picked some perfect alpine strawberries the other day. These are the best berries I will eat all year. So good! They are red all the way through. Not like the big white in the middle ones you get at the store.
So all in all, I’m hangin’ pretty tough out here. I don’t think I have ever experienced such dramatic and rapid change in my life as I am currently experiencing. And I should add that I am a change embracing bohemian type of girl. But this. This is truly epic. More on that later…